2011. július 20., szerda

Waitlisted

Today we got the letter from the Child Transplant Committee that we are on the official waiting list with a personal id code (not by name!) awaiting a bone-marrow donor (http://www.ovsz.hu/hu/varolista1gycsontvelo). (HUN)
It's a very unusual (unusually bad) feeling to be on a waiting list and just wait, wait for someone... who could give life for the second time to whom I gave life once. Also there's the overwhelming feeling that we are at the mercy of someone else, since from this day forward, it all depends on luck... the right cells... at the right time, at the right place...
The only "plus" in all of this is that nobody has to die for Zorka to live (unlike as is the case with some other organs)... it's just 3 days in the life of someone, but a whole life for the one who receives that bone-marrow... the life of a 6-year old little girl, who means Everything for me.

I'd like to emphasize that we are NOT looking for a donor on any community site and especially not by a spam email. This is something I think should not be made fun of, and neither would we prefer to be the subject of spam emails that are hated by most of us. Yes, we are looking for a donor but that should have its own place and conditions. For example Facebook I think is not a suitable place for this.

Of course we are not rejecting any help offered, but at least I'd like to know about any helpful initiatives before they started.

More about bone-marrow donation can be found here (in hungarian):

http://csvdonor.ovsz.hu/sites/cs/csontv/csontveloszorolap.pdf   (HUN)
I suggest anyone interested in more details to please inform yourselves on the home page of the National Blood Supply Service and if you have any questions, please forward them to the contacts listed there and don't try to get information from blogs or messageboards on the net, since these are not as reliable due to their informal nature.

Finding a matching donor is a long process. Beside the same blood-type, the genetic tissue-identity is also a requirement.

With the allogeneic stem cell transplantation we risk everything on one chance. There is no such thing as a "little" success or a "partial" success, there is only complete success or total failure...

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